“Procedure”

Someone from the hospital called to confirm my dad’s appointment tomorrow for his coronary artery bypass surgery. She said that we need to be at the hospital at 9:30am for some pre-op things to do, but the actual “procedure” would not begin until the early afternoon. After my mom got off the speaker phone, my dad says to us, “See how she said it’s a ‘procedure’? This isn’t surgery. It’s just a procedure, so this isn’t high risk or anything like that. They do so many of these every week!”

There are some forms of delusion that aren’t so terrible. This is one of them. If my dad is better able to accept this and have greater peace of mind when thinking of this as a “procedure” rather than a “surgery,” it’s completely fine by me.

Confrontation

I’ve been doing a lot of research in the last few days on artery blockages, bypass surgery, and this treadmill stress test that ultimately indicated that my dad needed an angiogram to identify his artery blockages. I’ve spoken with both his surgeon and his anesthesiologist at length to learn more (both of whom were incredibly patient, listened, and answered all my questions thoroughly), and I’ve also discussed this with others who are familiar with coronary artery bypass surgeries because they know people close to them who have had them. What I have found is that as common as bypass surgeries are, treadmill stress tests are just as common, if not more common, and are done regularly on people who are at high risk of heart disease, as indicated by family history. The American Heart Association recommends this as the #1 test for anyone with a history of heart disease in the family. It’s not a secret, and I don’t need to be a doctor to know this. It’s all available online for anyone to see and learn. They are done on people as young as their 20s and 30s who have indicated a family history of heart problems. Even Chris is one of these people, as he had this test done two years ago.

So you can imagine how angry I got after thinking about this whole chain of events. Why did my uncle have to tell my dad to ask his primary care doctor for the stress test — after his own stress test, which showed my uncle had a blockage? Why did my dad’s doctor not proactively recommend it to my dad, knowing my dad has heart issues already as well as high blood pressure and a family history of heart disease? Every person before my dad on that side of the family has died of a heart attack. My dad is very honest and open about discussing these issues and has made this all very clear to his primary care doctor. I posed this question to my dad’s surgeon, who paused and said, “That’s a very good question — one for your dad’s primary care doctor to answer.”

I scheduled some time with my dad’s primary care doctor to chat tonight. Needless to say, the conversation did not go so well. When he called me back, he was very curt and seemed confused as to why his patient’s daughter would be calling him. yet when I spoke with the other two doctors, they completely empathized and understood immediately why I would call — because I’m a concerned daughter. I explained to him my thoughts, and when I asked him point blank why he never recommended this specific test to my dad and had to wait until my dad asked HIM if he could do it, that was when the drama began.

He immediately started interrupting me, claiming I had “misinformation” and “misinterpreted” what I was reading and what I heard from the other two doctors. He said my dad exhibited no chest pains or tightness. To this, I insisted that this test is supposed to be preventive, not reactive — it certainly can (and should) be done reactively, but I thought the whole point of having a primary care doctor is to prevent problems, not just treat them after you are already ill? He insisted he was right and I was wrong, that I didn’t have the proper training to understand any of this. It was a lot of condescension, with him constantly raising his voice at me. Not one to be outdone, I made sure he knew I was not going to back down and just raised my voice even louder. And I told him to stop interrupting me. Here’s a hint: if I tell you that I’m not done speaking, it means you should probably shut up and let me speak. That doesn’t happen often, but when it does, I mean it. It became quite a shouting match in the end. I told him, I guess we’ll need to agree to disagree here. He laughed and said, “There’s nothing to disagree about. This is all very clear.” A few more back and forths, and I said, “This is going nowhere. This conversation is now over.” And I hung up.

While he was rude, condescending, and everything opposite of calm and empathetic, the worst part was when he actually told me that “family history” of any disease, whether it’s heart disease or cancer, is defined NOT by the family members before you such as your father, your grandfather, etc., but by those in your current generation, so your brother, sister, cousins, etc. I’d never heard anything more ludicrous in my life. “So you’re going to tell me that just because my father’s father and my great grandfather both died of heart attacks that this indicates nothing about my father’s risk for getting heart disease or a heart attack?” I asked him in complete shock.  He said yes — that’s how “family history” is defined by those in the medical profession. Oh, and I think he completely forgot my dad told him that his older brother died from a massive heart attack at age 65. That was over 14 years ago.

There’s a reason why the American Breast Cancer Foundation advocates that women whose mothers or grandmothers have had breast cancer should get tested earlier — because that’s how family history is defined – by anyone in your blood line. The same goes for anyone else.

I’m deeply dismayed at the fact that there are doctors like this who exist and can still practice medicine. Clearly, being proactive is not a valued or strong suit here. And this man, Richard Tang, is supposed to be the director of the Phase Clinic for Prevention of Heart Attack and Stroke at Kaiser in San Francisco.

Opening up

My dad never admits fear. He’s that stereotypical man. He always wants to seem like he is in control, like he knows what he’s doing and there’s no possible way he can be wrong. As you can imagine, that hasn’t really made any of our lives easier because we’ve butted heads quite a bit. I guess that’s what happens when you are stubborn and your dad is even more stubborn. Oh, and then your mom beats both of you for stubbornness.

We were on the phone today and I was explaining to him all of the things I’ve read about this coronary artery bypass surgery and what the recovery was going to look like. I also told him things that one of his doctors explained to me. These are all the things you need to expect, and these are all the things that you need to do to ensure a speedy recovery, I said. I asked him how he felt, and my dad hesitated and said, “Well, there’s just a fear of the unknown.” He wouldn’t fully say he had a fear of the unknown, but it’s my dad’s way of opening up and communicating to me that he is scared.

This is one of those moments in life we have when we get older, and we realize that although our parents are our parents and they are older, in these situations, it’s almost as though the tables have turned. Now, we have to take the responsibility to be the parents and they have to be the children. We have to take care of them and ensure that they don’t worry and going to be just fine.

Last November

It’s been almost a year since my dad’s best friend died. That seems like a weird thing for me to remember and think about, but he was a true friend and a genuine person, the kind of person who speaks in such a frank way that after he leaves you, you think, “Why can’t more people be as honest and real as he is?” He was a rarity.

I thought about him for the last two days after I heard about my dad’s blocked artery. I’m sure this friend had the same condition and just had no idea about it since he didn’t care for doctors’ visits and his general health. What would it be like if he were here and knew this about my dad? Would he take it upon himself to get his own heart health checked, too?

I have just a few but very fond memories of him and our conversations — in person, on the phone, and via e-mail. I remember asking him about his health, and he was honest and said he hadn’t seen a doctor in so many years. I told him that he should go — he was at that age when people started dying from heart attacks. He waved me away and said he’d think about it. I guess he never got around to it.

Too many sad things have happened in the last year and a half of my life. I still miss Ed every day, and the pain of losing him has only gotten stronger in the last few days since learning about our dad’s heart condition. But I hope that my dad’s surgery will go well and be a turning point in his life — in our lives together. I told him last year that he has to live until 150 and do whatever it takes to live that long because he’s not allowed to go anywhere. And I meant that.

Moments

Chris and I were at brunch today with my friend/former colleague and her husband, and we were telling them about how we use the One Second Every Day app as one way to document our lives. The app allows us to capture one second of every day and then mash them all together to create a single video. My friend’s husband was so impressed by the idea of it and my sample October video (since I break them up by month) that he downloaded the app on the spot and started playing around with it. “Wow, you guys are really documenting everything!” my friend exclaimed. We told them about this app after I mentioned I was creating a hard copy scrapbook of places we’ve been and things we’ve done together since the beginning of our relationship.

I thought about it for a while after we parted ways that afternoon. We spend so much of our time wanting to capture the “big” moments — births, graduations, engagements, weddings, anniversaries, holidays with family and friends, but as a society it just seems like we don’t spend enough time thinking about the real moments that make up our everyday life. Sure, those big life events are important, but how can we belittle what makes up the bulk of our lives? We get all excited and look forward to these big moments, but it’s almost to the detriment of the everyday — your *real* life. People don’t really seem to care so much when you are sharing a snapshot of what you did yesterday, but those moments are actually the majority of what make up your life and what your life is really about. Every day isn’t super exciting — it’s true. On Thursday, going to the dentist wasn’t fun or memorable, but it’s part of my life. It’s not always going to be glamorous or fun, and not everyone is going to be smiling or happy or posing with a champagne glass. But this is what life is — the everyday moments. And we shouldn’t forget that. This app is a reminder to me for this.

Another scary reality

I just put a flight itinerary on hold to go home next Wednesday. Sudden visits home are never for a good, happy reason.

I just found out last night that my dad failed a stress test for his heart, and then through an angiogram, he discovered that his left artery has a severe blockage. As a result of this, he has to have heart bypass surgery this Thursday morning. He’s going to be in the hospital for five nights after that, and then after that will be mostly recovering at home for the following 3-4 months.

The main reason my dad had this stress test done was because my uncle, his younger brother, had the same test done after sensing some chest pains, and he found he also had an artery blockage, yet it wasn’t severe enough for a bypass surgery, luckily for him. I spoke with my dad’s doctor tonight, and she reassured me how common this surgery was and how they do over a thousand of these surgeries in this hospital alone every year. The success rate is over 99.5%, with less than half a percent of patients experiencing complications. She said my dad was the ideal candidate given his vitals and his relatively young age, as most of the patients they do this on are between 70-90.

I know I’m supposed to be rational about this and calmed by all these facts, yet I can’t help but feel scared. Imagining my dad’s chest being opened up and his heart stopped for 30-45 minutes is absolutely terrifying.

I thought about Ed a lot this evening as I was learning about all of this from my parents and my dad’s doctor. A part of me knows that if he were here, he’d probably be hysterical, too, the way our mother is now. He was always the worrying type. Part of me wishes that we could share this experience together. The other part of me is a bit happy that he doesn’t have to deal with this stress — the stress of living and coming to terms with the fact that not everyone around you will live healthily forever.

Routine visit

I’m going to hate every visit to the dentist for the rest of my life.

My dentist today walked me through an X-ray of my teeth. He explained why my teeth are shaped the way they are, and then showed me what my bone structure is supposed to look like versus what it actually looks like. That’s never a good thing. Then, he said that basically everything wrong with my mouth is not because of poor hygiene or diet because he can clearly see I take good care to brush and floss more thoroughly than about 99 percent of his patients, but it’s all because of my grinding problem. Why do I get food stuck in my teeth everywhere so much more than I ever could remember before? Oh, that’s because of my grinding, too, which created those gaps. Strangely, my retainers still fit perfectly. I guess the gaps don’t affect the actual bite structure.

These are all signs of age. And I’m only 28 going on 29 soon.

Unexpected triggers

I’ve been spending the last three days in Tampa for work and was unlucky in not being able to get a direct flight back to New York. I connected in Miami tonight — my first time in the Miami airport, and it certainly lived up to Miami’s shiny and glitzy image.

My mother’s been worrying ever since I let her know on Monday afternoon that I was on my way to the airport for this trip. She hates it when I have to fly for work, especially when she knows I am traveling alone and to a city that I’m not familiar with. It’s even worse when my flights are at night (like this one), and she knows I will be riding in a cab from JFK back to my apartment alone. She called three times this afternoon to see where I was, and I was finally able to call her when I reached Miami.

“You know your mommy loves you very much, right?” she said on the phone today.

It sounded as though one of us was going to die soon.

“Yes, I love you, too,” I responded. “Don’t worry!”

“I know you think I am crazy and worry too much, but I worry about you when you do work travel. I only have one daughter. You are my baby girl,” my mom said tenderly.

I’m not sure what happened in that moment, but I suddenly started tearing up when she said that. I just felt this deep, sinking sensation because it occurred to me that yes, she only has one daughter; she only has one baby girl. And she used to have one son, her baby boy, and now he’s gone. Where did he go, and why did he have to go?

It doesn’t matter how old we get; we’re still our parents’ babies – at five weeks, at five years, at 50 years. No parent should ever have to bury her child. My parents know what that pain feels like. And even though Ed is my older brother, it still feels like in many ways, I had to bury my younger brother – my baby.

Over the last year and almost four months, I’ve realized that even the strangest things trigger emotion in me. The most harmless, normal things suddenly make me remember Ed and all the devastation I felt when I knew we lost him. Most of the time now, when I think of Ed, which usually happens multiple times throughout every day, I think of our happy moments together when we talked about things that were meaningful, when we had good food together and walked to places together. I think of how much he loved me and showered me with affection. I think of all the things I tried to do to help him get better… even though I failed. A lot of me has healed, and much faster than I thought. I am doing my everyday things again like my workouts, my job, reading, cooking. But I know that a part of me will never get over him. It’s like being permanently damaged, always wondering what you did wrong and what you could have done differently to prevent such damage from happening.

When staying is settling

Someone posted an article today about how everyone, assuming they are physically and mentally able, should move at least five times in his/her life; the idea behind the article was that “staying is settling.” For the same reasons that people should travel, they should move to get a better sense of what it is like to live in another place. When you are living your day to day life in a place that is not your home and thus not a familiar, comfortable place, it forces you to really listen to everything around you, everything from the verbiage that people use in their everyday language to their accents, to what really matters to them. How do these people in the place you do not call home perceive your home? How do they see the world that is outside of their own world? And when we are all together from different parts of this country or this world, how do we fit in with each other, if at all?

I am completely aware of the privileges I’ve had as someone who has traveled as much as I have in the last 28 years of my life. Most of that travel only started happening at age 24 and after, but I know that not everyone is able to do the types of traveling I have done. But let’s be honest: millions of people have been mobile for centuries with little money to their names. Money isn’t the real factor that holds people back from exploring the world whether it’s through travel or through living in other places; it’s really fear — fear of the unknown and unfamiliar.

I’ve been very fortunate to live and spend a great deal of time in and around three major cities of this country – San Francisco, Boston, and New York City. Yes, they are all metropolitan areas, but they’re all very different from each other in countless ways and have given me some much needed perspective on what it’s like to live in differents parts of the country.

I’ve been spending time in the last couple of days with two people who have never moved out of their home town their entire lives. Granted, they are both in their 20s and still have lots of deciding to do for their lives, but both are pretty content in staying where they are and have little to no desire to move and live in other places. Everyone makes their own decisions, but it’s hard to listen to these decisions when they make stereotypes about places that they are unfamiliar with or have never been to. The most common (and untrue) stereotypes I’ve heard in the last 24 hours are that New York is a dangerous place, all the people are unfriendly, and all New Yorkers, because of the vast number of restaurants and cuisines to choose from, must all be knowledgable about different cuisines and thus food snobs.

New York City, while a unique and amazing place, in many ways is just like every other city. We have a lot of transplants, but we also have a lot of people who have never, ever left this city and never intend on doing so (and are damn proud of it, for better or for worse). We have food snobs whose preference when eating out is to only patronize “fine dining” restaurants (I’ve actually met someone who explicitly said this to me at a Yelp event), we have people who only eat at delis and holes-in-the wall type restaurants, and we also have extremely picky and narrow-minded eaters who won’t eat anything “foreign” to them (that could even mean the sandwich shop on the next street. I’m not really talking about alligator or rabbit here). We have low socioeconomic neighborhoods that statistically speaking have higher rates of crime, but we also have brightly lit, lush tree-lined streets with doormen guarding every single building down the avenue. And until you live here or in any other city, it’s unfair, baseless, and simply ignorant to make sweeping judgments about what a city is like.

Friends’ friends meeting

Tonight was my first night in Tampa, and my friend insisted that I meet his friend who lives down there. His friend picked me up from the airport and took me to dinner with a few of his friends and colleagues. Before even meeting him, I was so surprised by his warmth and generosity. He originally planned to pick me up and take me back to his house (which apparently I found out is like a castle, complete with a moat!) so that I could have a home-cooked dinner with him, his wife, and his 2.5-month old baby, but because his wife wasn’t feeling well, there was a change in plan.

New York has jaded me in a lot of ways. I rarely expect anyone to go out of their way to do anything for me; in fact, I expect the complete opposite. I barely even expect that people will respond to my text messages in a 24-hour period, much less drive to the airport to pick me up and offer me a home-cooked meal when they have no idea who I am or what I even look like. Based on my six years of living here, it’s always felt that everyone wants to project the image that they are always busy and not available when in fact, it’s really because they don’t care that much and are waiting for something better or potentially more fun to come along (or they are just fearful of commitment, even to the smallest possible things). In New York, you can be friends, even “good” friends with someone for years and never get invited to their apartment. It’s just the way things are here. And for me, it’s getting a bit tired.