Finally home

It’s been exactly one year and four months since Ed passed away. I never would have thought that at exactly this moment in time, my dad would have had double bypass surgery, finally gotten discharged from the hospital after nine nights, and be back home recovering in his own home with my mom and me. I also never would have thought that he’d finally acknowledge after all these years exactly how freezing this house is, and that the heat actually does need to be turned on. He was coughing uncontrollably when we got home and we finally realized he was coughing so much because of all the cold air circulating throughout the house. Once the heat was turned on to 72 degrees Fahrenheit, his coughing calmed down and he was able to breathe comfortably.

Ed would have been happy to know that our father was recovering quickly from his heart surgery. I think he may have even secretly been more excited that my dad finally acknowledged he was wrong about the temperature of the house and finally decided to voluntarily turn on the heat. He’d probably even be in disbelief right now if he were here to see and experience this himself.

Our dad is finally home, though. He’s survived the scary surgery with flying colors, and he won’t be joining Ed anytime soon. That’s right. My dad is getting closer to his 150th birthday like I said he would. It’s a good moment today.

Complexities

The older I get, the more and more I realize how complex feelings can be. When we are children, everything seems so simple. We are happy or sad or angry. We feel confused or determined or apathetic. As we get older, all of these feelings seem to interweave amongst themselves, and it becomes more difficult to just say we feel one emotion or another.

Maybe I’m not meeting or spending time with the right people, or maybe it’s because people want to simplify things in an attempt to avoid a genuine understanding, but I’m having that feeling again that no one understands what I am trying to say.

I had a friend over for dinner tonight who I just became reacquainted with over the last few months. My mom was spending the night at the hospital with my dad, for what will be his ninth and hopefully last night there before getting discharged, so I had the house to myself for once. I was expressing to him what an arduous endeavor it’s been being back and my constant feeling of emotional and physical exhaustion, and I said that it’s even harder without my brother around. He asked where he was.

That’s when it hit me that I never told him about what happened to Ed.

I told him the condensed version, and of course, he was shocked and had a pained look on his face as I described the situation. I expressed anger and frustration with my family, and he expressed empathy towards them and their lack of understanding of mental illness.

I don’t know why, but while empathy is always something I value greatly, an empathy towards this always seems to infuriate me.

It’s not as simple as a blame game, or feeling like if they understood or tried harder to understand that maybe Ed would be here today. It’s also about taking responsibility and realizing that someone needs help, and we need to give it. It’s about understanding the vulnerability of a human being to criticism and pain. It’s about realizing it’s not always about ourselves and how an action or state of being will reflect on us and acknowledging it’s about the person next to you.

Every time I tell the short or long version of “where is Ed now,” I feel pain all over my body. I don’t like talking about it, but I want to be open about it to increase awareness of types of pain and suffering and that these are not isolated experiences. I want to make sure Ed is not forgotten and that he is constantly acknowledged and part of my life. I get irritated when people say, “You don’t have to tell me what happened – it’s okay,” even though they are saying it partly half because they don’t want to cause me more pain, and of course, half because they may not want to really know. I hate being afraid of the truth, so I want others to know the truth.

And so it begins… again

I’m spending another night at the hospital. My dad is feeling fine — his chest incision and areas of his legs where the surgeons took the grafts are healing normally, but now, he has an infection on his arm from the IV because it seems that his skin was so thick that the nurses had problems placing the IV into his vein. His arm swelled up to about one and a half times its normal size, and it got to a point where when the nurse took his blood pressure, the blood pressure machine cuff got so tight on his arm that my dad said he felt like his whole arm was going to explode — the woes of having a dad with literally thick skin.

This will be his eighth night in the hospital. We were originally hoping he’d only have to stay here for six nights, but it seems it’s going on for eight or nine now. Part of me is a bit relieved that he will be staying because it means less care taking on my mom’s part and more for the staff here to do, but the other part of me just wants him settled back at home to be comfortable and in his own space. Because my time here is coming to an end, my mom is gradually hinting that I should extend my stay since she says “I can’t handle all this by myself. There is so much to do. How am I supposed to do all this myself?” The guilt tripping had to start at some point, so I guess that some point is now. In the beginning, I heard a lot of “thank you for supporting Daddy and me.” Somewhere along the way, it became, “I’m not going to be angry with you if you decide not to, but you really should stay here longer.” Thanks, Mom.

 

DMV Woes

California DMV is a complete disaster zone. Why would someone who walks in somehow manage to wait for less time than someone with an appointment? I guess I shouldn’t complain because I ended up benefiting from this today to renew my driver’s license. I was in and out within an hour this morning.

It’s a pretty depressing place, though. Everyone is in a bad mood because they all know that they have to wait — first, just to get into the building (it was raining today, so that made this part even more fun than usual), and the second time, to actually get the real work done, whether that’s a written test, fingerprinting, an eye exam, and/or get your photo taken. I had to fill out a form, have my eyes checked, get fingerprinted, and take my picture. It’s been 13 years since I’ve had my photo taken for my driver’s license. I am smiling in the last photo when I was just 15, but in this photo, I am half smiling. I couldn’t bring myself to fully smile because I remembered the last time I really looked at anyone’s California driver’s license, it was my brother’s — the license he never got to use because he died before he had the chance.

It was sitting in his desk when I came home on July 24th last year. Ed had very recently sat in person at the DMV, waiting to renew like everyone else, because as per California’s stupid, inefficient law, you can only renew via internet or mail two times in a row; the next time, you have to go in person to renew. He had his number called just the way I did, and then had his photo taken. His photo was absolutely miserable. He looked depressed, with eyes as though they’d given up on the world because the world had given up on him. His lips were straight, almost frowning without even really trying. My eyes watered when I saw it.

His old license was in his wallet when our parents picked it up from the Marin County Coroner’s Office. That’s why the new one wasn’t in his wallet. And I had panicked on July 22 when my mom informed me that he was missing and said his driver’s license was in his desk, because I thought… oh my god, he doesn’t want to be found. That’s why he left his wallet behind.

Life really sucks when even a visit to the DMV reminds you of your brother who committed suicide.

Reconciliation

My younger uncle and my dad have never really gotten along. It stems from seemingly ridiculous childhood problems and their respective high levels of stubbornness. In my family, everyone loves to blame each other, and no one ever wants to admit fault — at least, out loud to others.

I guess it had to take a family history of heart disease to get these two to start reaching out to one another. They both saw their older brother pass away from a heart attack 14 years ago at just 65 years of age, and then my uncle had his angiogram two months ago that revealed his blocked artery, which prompted my dad to call him. And ultimately, it was my uncle who suggested to my dad that he get the stress test and angiogram done, which led to my dad’s bypass surgery this past week.

My uncle visited for the second time tonight, and he spent two hours in my dad’s room with us and my aunt, talking about childhood memories, recent events, and my grandpa’s position in the U.S. Navy during World War II. For the first time, I found out that my grandpa went to Okinawa to fight during the war, and he got within 10 inches of some sharp object that almost killed him. He apparently kept it and brought it back to the U.S. with him after the war — as a reminder of how close he came to death and how precious life is.

My dad and uncle were laughing so hard at a few points that my dad had to ask everyone to calm down because he was afraid his laughter would open up his chest incision. It was amazing to see them both laughing so freely together. It looked and felt natural — I couldn’t believe it.

Is this what it takes for two hostile brothers to reconcile? It’s never too late. This surgery will save my dad’s life — and perhaps even my dad’s relationship with his younger brother. Here’s to hoping we’re all moving in a positive direction for both.

Another night at the hospital

I spent the night with my dad in his room at the hospital last night and woke up every hour or so when a nurse or lab technician would come in to check on things. As I was getting up this morning, I felt the deepest wave of respect for both of my parents. All I’m doing in life right now is working and taking care of my dad part time temporarily, and I’m already completely worn out. I have no idea how they took care of my grandma while she was sick in 1995, took care of me and Ed, and also did both of their full time jobs.

I went to the bathroom and stared at myself in the mirror. All I could see was a blotchy face, flat, greasy hair, dark circles under my eyes, and what appears to be a new indent on the right side of my face, marking the fact that I am aging along with my parents. I’m going to be 29 in two months. Ugh.

One child

My dad is in his own private regular room, away from the constant noise and lights of the Cardiovasular Intensive Care Unit, and he’s looking and sounding better each day. Today, he was having an irregular heart beat, so he had to slow down his walking a bit. A few of the nurses have commended us for always being there and taking turns spending the night with him. One of them was remarking how pretty and loving I am with my dad. “You just have one daughter?” a few of them asked my mom. “Yes, just one child,” my mom said, half smiling weakly.

I felt so angry when I heard the words come out of her mouth. I know that this is the only easy response to nurses and medical professionals who we will likely (fingers crossed, no offense) not have to see again, but I felt hurt anyway. I’m an only child now? I’m not an only child. I have a big brother. He may not be living, but he still exists.

I don’t want my brother to be forgotten. The idea that anyone would forget Ed angers me to no end. I know my parents won’t forget about him and will think about him constantly each day, but I hate the thought that we have to act “normal” as though he doesn’t exist around strangers. I won’t forget Ed. It’s not even the slightest bit possible. And the funny thing is… now, I think of Ed in a different way… because I am thinking about him in the context of leaving me alone in this earthly world to care for our aging parents by myself. It’s a lonely feeling, a terrifying responsibility. I have no one else in the world to lean on except myself.

Hospitals

I hate hospitals. They smell funny, have stale air, and just have a general aura of “ugh.” Bacteria are everywhere here, and everyone constantly is squirting alcohol or some form of antibacterial gel on their hands. Today, I saw a happy man carrying a big basket of flowers and balloons that read “It’s a GIRL!” It was likely to a new mother in one of the patient rooms. The idea of having to give birth to a child in a hospital just makes me seriously think about wanting to have a midwife and have a water birth in the comfort of my own future bath tub.

I just spent the night at the hospital in the Cardiovascular Intensive Care Unit with my dad. I slept on and off throughout the night awkwardly in a chair next to him. My mom and I are taking turns staying with him each night until he gets home. Today, he was transferred out of the ICU into a regular room because his blood pressure has returned back to normal. All I have to say is, I cannot wait until he is well enough to come back home. I’m so exhausted.

My mom has a church service to attend tomorrow morning, and because she doesn’t want my dad to stay alone too long (the nurses didn’t give him his lunch until 2pm today while I was out with my friend, so she was furious), I said I’d arrive at the hospital before she leaves in the morning. My dad insisted he was fine and says that he can take care of himself. “Why do you want to come again tomorrow?” he said to me. “Because I want to see you, doofus!” I exclaimed. “Why do you think I came home?!” He laughs, along with my mom, aunt, cousin and his wife, who are visiting.

Sometimes, my dad is so clueless. But his progress is making me feel really proud now.

Beginning of recovery

After getting some chores and work done this morning, my aunt and I came back to the hospital to see my dad. My mom looked as though she had just spent the night dodging bullets, and my dad… Well, he looked like he just had heart surgery. I’d never seen him more frail in my life. He initially was so weak this morning that when the nurse asked him if he was ready to take a walk, he laughed and said, ‘No way!” His voice was weak, and he said his chest hurt every time he spoke due to the incision there from the surgery. Later in the morning after I arrived, he became more animated and alert, and he said he was up for a walk. He did not one lap but two laps around the ICU, and he said he could do another and feel fine, but the nurses said he should sit back down. Clearly, he was very proud of himself.

“How do you feel, Daddy?” I asked him today. “Do you feel like you have a new heart?”

He said he felt good, just very tired and a bit dizzy. The only pain he felt was from the chest incision. The nurse said that would take some time to heal, but the pain was completely normal. I asked him what it felt like between the period of getting sedated and then waking up after surgery.

“That Wednesday before the surgery… I was really scared,” he finally admitted. “I had no idea what was going to happen.” He then told me that wasn’t fully the truth because he spent a few days before reading all about the surgery and even watched a few bypass surgery videos on YouTube. Yes, that’s the kind of person my dad is. He wants to know everything and even see the gruesome stuff.

“Well, I didn’t watch the entire surgery,” he insisted. “I can’t handle that kind of stuff after a certain point!”

He said that after he fell asleep from the anesthesia, he felt like he was in one long sleep, like a coma. He said he dreamt he was in some place he didn’t recognize, and he said he had no idea which direction to go in. The next thing he knew, he was waking up, and he saw my mom sitting in a chair looking over him. Then it hit him: he survived.

“I know heart disease runs in this family,” he said. “Ever since I turned 64, I kept thinking… how much longer do I have? When is it (a heart attack) going to happen?”

It’s a scary reality to think about, but I’m so thankful that my dad had this surgery and every procedure and test before it that led up to this. Like my boss says, it’s like Life 2.0 for him. He has a new and renewed heart, and another shot at life. This surgery is “standard” for so many people now due to technological advances. I don’t think I’ve ever been happier being part of today’s world than the last 24 hours. My dad is going to be healthy and happy soon.

Did you hear that, Ed? Daddy’s on the road to recovery. He won’t be joining you anytime soon, but I know you aren’t upset about that. I know you aren’t worrying about the surgery anymore and are calm now that his heart has been fixed. Just don’t worry like our mother is about every little thing.

Bypass surgery

My mom and I spent an excruciating five hours waiting for a call or page from the surgeon to let us know the status of my dad’s coronary artery bypass surgery today. Within less than 45 minutes of bringing him into the pre-operating room, the pager goes off, and I immediately feel sick, wondering, why would they be paging us so soon? Has something already gone wrong?

Apparently, it was just the surgeon and the anesthesiologist who wanted to meet with us beforehand. Thank God.

The surgery officially began around 2pm, and then at about 6pm, the surgeon calls us in the waiting room and informs us that the surgery was a success. My dad’s heart was strong the entire time, and he anticipates a very smooth recovery. I can’t remember the last time I felt more relief. I think my mom felt a bit more calm once my aunt joined us in the waiting room.

We saw him for a bit in the ICU, but he hadn’t woken up yet. My aunt and I went home while my mom insisted that she stay with him overnight. His room was too small, so the nurse asked her to stay in the waiting room.

After I got home, ate dinner, and got ready for bed, I realized that this was the first time I’d ever slept in this house by myself. There were times when my brother was away for a trip, but there’s always been at least two other people in this house sleeping at night when I’ve been home. I felt this deep pain when I looked over at my brother’s bed, knowing that he wasn’t here with us today. The entire day today felt weird without him. It’s like I expected him to be there in the waiting room, but he wasn’t. The other part of me thought, he’s out there somewhere, so why haven’t I told him myself about our dad’s surgery? When is he going to come back?

It doesn’t feel like he’s really gone, and it made me miss him even more today. Realistically, I know it would have been really hard on him, probably even more so than on my mom and me because he tends to get the brunt of our mother’s wrath, particularly in trying situations like this, but I still miss him and wish he were here. Times like this will just be a constant reminder to me that his life ended too soon, and that from now on, I will need to deal with all of our family life events all by myself.