Radiology SNAFU and contemplations of potential terminal illnesses

I attempted to go to the radiology location close to my apartment yesterday after my pulmonologist appointment, and although chest x-rays are usually drop-in and don’t require an appointment, I apparently came on a bad day. I knew it was a bad day immediately as I entered the facility. There were so many people in the waiting room that all the seats were taken, and at least a dozen people were standing and waiting. Plus, the line for the receptionist had at least half a dozen people there. When I finally got to the desk, they told me that today was an unusual day: they were behind by over an hour, and so I’d have to come back tomorrow. To be safe, I made an appointment for 9am and returned today… to find out that the x-ray machine was down at this location, so I had to go down to Chelsea. They claim they called me twice and I never answered, but I know this was false because a) I never saw any missed call, nor any voice message (hello? isn’t that medical protocol to leave a MESSAGE?), and b) at least seven other people were standing there, yelling at the front desk workers because they said they never received any calls or voice messages. These are people who had commuted out of their way and weren’t anywhere as young or mobile as I was. Plus, from the pamphlets they were holding, they seemed like they had far, far worse, more serious conditions than I had.

Annoyingly, I made an appointment at their Chelsea location and hopped on the train downtown. And as I sat in the waiting room, I noticed the patients around me waiting to get called in for their x-rays. And they were holding pamphlets about everything from breast, lung, to pancreatic cancer. Lung cancer is the most deadly cancer in the U.S. Breast cancer unfortunately is more common than it is not. And pancreatic cancer is known to be one of the most painful cancers in existence. All I could think when I saw all these people around me was: wow. I just felt so terrible to think they were all looking at these x-rays and appointments as another step along their way to a potential death sentence. It must be so terrifying. One patient looks like she came in with the emotional support of both her son and daughter.

And then I had this dark thought: what if the x-ray results came back and they found I had something more serious that was wrong, like a tumor or malignant growth of some sort? How would I handle the news? How would I share that news, if at all, and to whom, and when? How would I even look at my young baby and think that my days could be numbered with her, this tiny little being that I had wanted so badly and waited so long for? It was a bit unsettling, but a real thought, a potential reality. It doesn’t escape me that death could always be knocking on my door at any point in my life. I am not one of those people who is in denial that death is a part of life, and it doesn’t always happen when you think it will, or when you think it will be convenient. I’ve known too many people who have died too young. Ed is just one of them, the closest of them. And my friend Raj is still the biggest mystery for all who loved him, as we still have no idea what took his life just over two years ago. Life is not long for everyone, unfortunately.

Pulmonologist visit, tonsil infection, and the search for a new PCP

Yesterday’s GI doctor suggested I visit a pulmonologist to get my respiratory system checked out given my coughing fits. It may be that something in my windpipe or lungs was causing all my recurrent coughing fits and phlegm build up, so I took her referral and was lucky enough to get an appointment with this doctor on the very same day I called. I called at around noon and sounded so pathetic and sad on the phone that the receptionist took genuine pity on me. She told the doctor how awful I sounded, and despite having a full schedule of patients today before he left for his vacation to the Galapagos Islands tomorrow for the next 1.5 weeks, he told her that he could fit me in at 2:20. So I hauled myself over to the East 60s to his office and waited.

I thought he’d be the kind of doctor I liked before I even came in. I took a quick peek at his Google Reviews before I called the office, and almost all his patients raved about him, saying he had excellent bedside manner, was super friendly and thorough, never rushed you, and was extremely smart and knowledgable even outside of the pulmonary purview. Once he came into my exam room, we spent about 30 minutes together, discussing history, the events that led to today, my symptoms, and chit chatted about work, travel, kids, and life in New York. He told me how he knew and previously worked with my GI doctor, and how he had seen so many crazy things while working in an ICU for many years previously. So he’s clearly knowledgable about a broad range of things despite being focused on the respiratory system now. He did a thorough exam, which included listening to me breathe, a breathing test, examining my mouth and throat. He let me know that I actually did not have hand foot mouth disease — I had a tonsil infection. All those white blobs I could see on my tonsils were pus pockets everywhere, as lovely as that sounds! So he prescribed me a z-pak antibiotic and a nasal spray…. which he suggested I use every day, morning and night, to ward off all the nasty germs my child would continue to introduce me to… until she’s at least age 6-7. He was NOT joking about that. He also gave me a referral to get a chest x-ray done and suggested I do it either today or tomorrow so we could get the results in ASAP. He reassured me that while he’d be out the next 1.5 weeks that the other doctor in his practice would review my results once the x-ray was in and give me next steps.

I really liked this guy. He was just so normal, so smart, and even funny, like the kind of doctor I’d want as my primary care provider. Why can’t HE be my PCP….?

Visit to the GI doctor… yielded nada

This morning, for the very first time, I actually commuted during rush hour. My appointment with the gastroenterologist was for 9am, so I rode the B train for three stops and walked over to the GI office. The subway stations were packed; there were lines to get on and off the stairs in the subway station. I was quickly reminded how much I do NOT miss morning commuting on the train and am grateful for the ability to work from home, even if that means I do far less socializing than I did before.

The highly sought after gastroenterologist that I got a referral to see was quite down to earth and lovely. I generally always know that I will like a doctor when we first meet ,and s/he introduces herself by her full name, as opposed to “Dr. X.” We talked about my previous experience getting sick in Australia/New Zealand, the silent reflux I got diagnosed with that left me with my larynx swollen, red, and awful. She came to the conclusion pretty quickly that this was, fortunately for me, NOT a GI issue, but rather an issue of a cough that gets unwieldy and needs to be controlled, likely with some level of codeine, before it gets hacky with phlegm and vomity. She saw no potential issues with GERD or acid reflux. And so she had two suggestions: go back to my ENT doctor to see what his thoughts were and if he could prescribe something stronger to help my cough from getting too unwieldy (or even give a recommendation for an OTC medication that would control how debilitating the cough gets), and/or see a pulmonologist. Since she’s a GI doctor, she had no recommendations or knowledge of pain killers or cough medications that could be prescribed, but suggested lightly that I lay low, drink lots of hot/warm fluids, and suck on lozenges to keep my throat happier.

She was really kind and personable. I enjoyed meeting with her. I guess as she says, I should be happy that this is NOT a GI issue because if it was, it would likely mean a lot of changes in my lifestyle. I just wish she could have prescribed me SOMETHING to help me.

Yet, after I got home, I realized quickly that I had a weird bump on my lip. I also noticed that my throat was getting quite sore and painful, and after shining a light inside and self examining, I realized part of the back of my throat had turned white. And around the same time, Kaia’s daycare sent a notification to all parents of her classroom that a kid had been diagnosed with hand foot mouth disease.

You have got to be kidding me… Is HAND FOOT MOUTH what I have again, on top of being sick for the last two weeks? WHAT the actual FUCK? How can my luck get any worse than being sick for the last 2+ weeks…?!!!! If anything, this explains my body aches from yesterday!!

Being sick in NYC

Today marks exactly two weeks of being sick. I thought I was on the mend on Friday when I went the entire day without a single coughing fit. But the coughing has still persisted. My inability to speak full sentences in my natural voice is driving me crazy. And yesterday, after dinner and a single sip of Chris’s beer, I ended up vomiting part of dinner and all of that one sip of beer. That was not fun.

I took a walk today during the weekday for the very first time since I got sick two weeks ago, and did a quick trip to Trader Joe’s. I hadn’t been here in about 2.5 weeks, and I had missed it. I realized that some of the things I wanted to pick up were not there, like my usual Ritz-like crackers. But I did pick up a few items that were new for me, like the mushroom umami seasoning and the cocoa batons, to add some variety to our snack rotation, and to the seasonings I use on the Pookster’s lunch vegetables. The fun thing about Trader Joe’s is that they always have new products that are worth testing out. The frustrating part about Trader Joe’s is that sometimes, those fun products get pulled from the shelves quite quickly, so you can’t really ever get too attached to any one thing. Chris asked me to buy these animal crackers that were coated with chocolate on one side today that he remembered buying and liking back in 2016. I told him that I doubted they’d still be in stock. And well, I was right: the only animal crackers on the shelves were the sad, plain ones. He was not pleased.

And now my body is aching again. What is wrong with me, really, and how is it even possible I am still sick after two weeks??? It was amazing I got through an hour long meeting today where I did the majority of the talking — good thing for the mute button!

Pookie’s appetite is coming back

Although Kaia was already getting better by the time she had her doctor’s appointment a week and a half ago, her appetite took a while to come back. She still relied on her “safe,” comfort foods, so mostly carbs and milk, with a little bit of protein here and there. We weren’t sure when she’d start eating her usual voracious amounts again. She just finished her course of antibiotics for her ear infection yesterday, and this past weekend, she already seemed more curious about foods the way she normally is. So this morning for breakfast, she was absolutely ravenous: she ate some stir-fried gai lan, an entire piece of whole wheat toast with peanut butter; a large portion of Peruvian style red beans and rice, two WHOLE pieces of Weetbix, served in 1/2 portions until I knew for sure she wanted more, and finally a handful of blueberries. And she still wanted to keep going! But we had to clean her up and get her ready for school for the day. So I promised her that I’d pack more blueberries for her to eat during morning snack time at school. It looks like she ended up eating almost all of them, along with her Cheerios, once she got there.

Pookie’s appetite is back. It makes me so happy to see my baby eat a lot, and a lot of variety. I think that’s what every parent wants for their growing toddler.

Coughing fit free – first time in 8 days

I’ve been sick for the last ten days. It wasn’t until day 3 of being sick when the coughing fits began, so last Thursday. But I can say that yesterday, Friday, was the first day in eight days when I was finally free of any coughing fits whatsoever, and it felt very freeing! It was almost like I couldn’t believe that the entire day passed without the need to run into the bathroom quickly to either throw up or hack up a ton of phlegm. Today also had no coughing fits, so we went out for the first time in two weeks to Bed-Stuy for some eating and exploration of our city.

It’s weird being sick for a while, and sick in a way where you are actually prevented from doing everyday, normal things like going out for a walk, eating at a restaurant, or buying groceries. Those are the times when you realize how important it is to take care of your health and your health first. And it also makes you appreciate it when you finally feel better and like you actually have the energy to leave the house for a day. Unless you’ve had a series of coughing fits yourself, you probably have no idea how debilitating they can truly be. Coughing up massive amounts of phlegm or to the point of vomiting really takes up so much of your physical and mental energy. Many times after the end of a coughing fit, I was so beyond exhausted that all I could do was lie down. Other times, I’d cough myself into a massive headache. Neither was fun at all. So it was refreshing to finally leave the house to do something fun today. I was still coughing, but it was no where as scary as the last eight days.

Thinking of chicken tenders

Being sick, I don’t really think of food very much. I’ve been cooking and doing a lot of food prep, but that’s been more out of necessity to make sure Pookster and the family have food to eat rather than because some culinary curiosity got my juices flowing. Everything I’ve been doing in the last week in the kitchen has been more or less done while on auto pilot. I’m just trying to get things done and get people fed.

But last Sunday, when we did leave the apartment for some fresh air, we ate outdoors at Riverside Park at a spot close by, and I figured I’d just order something simple, and hopefully something that didn’t make me more phlegmy or want to throw up. So I got some chicken tenders. I don’t know if it was just me, but they were very, very good. Usually, unless I’m making them myself, I find chicken tenders quite bland and unflavorful, especially given they are usually made with chicken breast and not thighs. But these were very good: juicy, seasoned just right, with a good crunch. I decided I would use the chicken tenderloins in my freezer that I got from Butcherbox to make my own this weekend, complete with parmesan, oregano, and some fun seasonings. How strange it is that chicken tenders are what is getting me a bit excited about cooking again while ill?

When everything drags because you’re sick

The last eight days have felt very long. Being sick, especially so sick that you can’t even do everyday things, is truly the worst. It feels like you are non-functional and cannot get anything done. While at this point, I can do things like work emails, the occasional call, and everyday household tasks, it’s like I am just waiting for my next coughing fit to happen. And when it does happen, who knows how long it will last and how exhausted I will be after. The act of coughing really wears on your body. It literally shakes your entire body inside out. And when all this mucus comes out, it’s not only exhausting but disgustingly unpleasant. I am still waiting to see the light at the end when I finally feel better and like I’m not waiting for yet another coughing fit, but I’m not sure when that will be at this point. Everything just feels like it’s dragging, and I have no motivation to do anything.

On day 7 of being ill

It’s now officially been a week of being sick. It’s been over a week of Pookster being sick, but the good news is that she’s on the mend, while I’m still hacking up phlegm. I contacted my OB-GYN to get a gastroenterologist referral (my primary care doctor has stopped accepting any insurance – how fun!), and the earliest appointment they had available was for next Thursday, so I made the appointment. I hope they will be able to shed some light on what I’ve been experiencing with coughing fits and endless mucus during every cold for the last six years.

It’s annoying to think about how I’ve brought this up to nearly every doctor (okay, not the OB-GYNs, but all the other primary care doctors I’ve spoken with), and not ONE of them has ever suggested I go see a specialist about this problem. Every single one of them has brushed this off, saying that different people have different reactions to different viruses. That’s always helpful and enlightening, isn’t it? It’s not supposed to be normal. But I guess that goes to show that you really need to advocate for yourself when you think something is wrong. Doctors aren’t incentivized to really help you, sadly. They’re just incentivized to get paid for your visit.

Babies are resilient while adults suffer

After just a day of antibiotics, Kaia is already looking and sounding better. She’s talkative, babbling and saying real words constantly, and walking around the apartment as though she owns the place. She’s interacting with her toys and a couple of stuffed animals and demanding foods once again, so she’s back to her semi-normal self!

But me? Every time I think I am feeling better, I find myself running into the bathroom to cough up endless amounts of phlegm, and in the worst cases, kneeling over the toilet to throw up whatever I had just eaten. Doctor after doctor has told me that sometimes, different viruses just hit people differently, so I shouldn’t think too much of it. But is this really just the cold virus’s fault over the last six years since I first got silent reflux, or did something happen to me when I got that virus that changed something about my body?

I went to chat with the pharmacist at Duane Reade today to ask for his recommendations for my symptoms. He suggested that I get Mucinex with the cough suppressant, and Benadryl of all things. I wasn’t clear on the Benadryl since I thought that was supposed to be an allergy medication, but he told me that it helps with mucus production, too, and would dry it out for me while I slept. The Teladoc doctor I spoke with recommended a decongestant that would not help with mucus, and when I told the pharmacist this, he looked at me like I was nuts and clarified what that medication was for. It’s always fun to talk to incompetent doctors via Teladoc.