Acceptance

I think that I’ve finally accepted that Ed isn’t with us anymore. I’ve accepted how he passed, how I will never see or touch or hug or kiss my brother ever again. I’ve accepted that he will never breathe again, that I will never be able to watch him sleep peacefully with that slightly troubled look on his face as I did this last March. I’ve accepted that I’m not going to give him another Christmas or birthday gift again.

That doesn’t mean I don’t hate it. I absolutely hate it, and I’m still angry about it. I’m mad at everyone who didn’t take his illness seriously and anyone who set him aside as someone who wasn’t “important enough” to talk to or get to know.

But then on the flip side of that, I’m also really grateful to the people who did treat him very well and did try to get to know him, people like my closest friends, my Chris, and the pastor at his church.

Ed doesn’t want me to be angry all the time. I know he just wants his “strong” little sister to be happy, so I’m going to try my best, for his sake, to not be angry at the world for him… because he wouldn’t have wanted that.

Shine

I was lazy this morning, so I slept in until almost 10:30. So much for being productive on the weekends.

One reason that I’ve felt like sleeping in on the weekends lately is because I know that in dreams, I have a chance of seeing Ed and being with him. That sounds kind of ridiculous because as a living person, I should be maximizing awake-time, but in this world, I know I have no chance of ever seeing him again. In my subconscious when I am asleep, there is always a chance, so that excites me and makes me hopeful that he will come.

Well, he came again this morning. I’m walking on a long, wide street, and I notice him standing in front of a big building across the road. As soon as I see him, I run up to him to embrace him, and I begin sobbing because of how happy I am to see him again. The seconds before I actually get my arms around him feel like they are happening in slow motion; my legs get weak, so every step forward I take seems heavy, and his mouth curling into a smile when he sees me seems like it takes minutes for his smile to form. As we are embracing, he says to me, “Yvonne, I just want you to shine. I’m so sorry I hurt you.” I keep crying during our embrace, and the world seems to fade away.. at least, until I wake up.

Ed, I miss you too much to shine right now. All I feel this week is pain.

Watching old home videos

A few nights ago, Ed came to me again in a dream. He probably decided to pay me a visit since I’ve been emotionally all over the place this week and thought it might perk me up a bit.

I was going home to San Francisco, and when I opened the door, I saw him sitting in the dining room watching a TV on the table. I ran up to hug him, and as I had my arms around him, I noticed that he was actually watching old home videos of all of his adult birthdays and times when he was receiving gifts. There’s one scene where I am bringing out a huge chocolate cake with a candle on it, and he has a big smile on his face. I asked him where these videos came from and who took them, but he was so mesmerized in watching that he didn’t respond.

The funny thing about this dream is that no home videos exist of us as adults celebrating any of our birthdays. We rarely even took photos unless it was just my taking photos of the cake or the food. In retrospect, I wish I had taken photos of us, but it’s too late now.

Heightened awareness

In the last few months, it feels as though my awareness to people’s levels of listening, understanding, and empathy has been heightened. My need to observe others taking in what I am saying, doing, and acting has gone up. In general, I’m pretty aware of whether someone loves, hates, or is bored about what I am talking about, but lately, I feel even more sensitive to it.

This isn’t really a good thing because I’ve already become more untrusting of the world and of what people tell me. I’m also not sure whether it means anything when I tell someone something that isn’t positive about my life, and they simply respond, “I’m sorry to hear that.” It sounds too PC, like they want to sound like they care but really just have no idea how to express that (assuming they do).

Ed had a lot of points during his life where he basically thought no one outside of our family cared about him… and thought even people in our extended family didn’t really care (this is probably true of both him and me since our relatives are terrible). Despite his extreme generosity to near strangers, he went through periods where he thought being nice and generous to people just wasn’t really worth it, and he used to tell me this whenever he was thinking about it. I always told him that he shouldn’t look at it that way and he should be kind to everyone, but now, I’m realizing how stupid that sounds. I believe in some form of karma – if you do good things, hopefully at some point, good things will also come to you. But it’s exhausting to be nice to everyone for the sake of being nice. The most important thing is just to be your damn self and to not be phony.

Ed never even knew how to be fake.

Holidays

This week has been pretty miserable emotionally. I’m sure it’s a combination of a lot of things – Daylight Savings Time and the pitch black sky when I leave the office for the day, the colder temperatures, the fact that I know that Thanksgiving and Christmas are coming, and they will be the first Thanksgiving and Christmases that Ed will not be able to see. I used to think that maybe this year or the following, I’d go home for Thanksgiving or buy Ed a plane ticket to come to where I was so that we could have Thanksgiving together as family. I haven’t been home for Thanksgiving since my senior year of high school in 2003. None of those potential plans will ever have the chance of happening again.

But then I remember how miserable last Thanksgiving and Christmas were for Ed because I wasn’t home for either holiday, and none of my cousins or aunt or uncle acknowledged him or came home to see him. Actually, no one even called him or sent him a gift for Christmas except me. I was in Australia and still made sure to call him on his Christmas day.

The world isn’t a better place without Ed, but somehow, I have a feeling he is probably in a better place for himself because this world was never kind or good enough to him. Maybe once, I can appreciate someone’s selfishness to end his life, as some people would call it. But it’s sad when even your family fails you.

Productivity

I’ve skipped the gym the last two mornings. I feel so unproductive.

The last two days, I’ve felt slightly irritable and just don’t really want to actively do anything… except read about food. I’m not sure if it’s Daylight Savings Time ending or just my moodiness, or just the fact that I was traveling this past weekend, and now, I am not.

Maybe this is about 1/1,000th of what Ed felt. My poor, sweet Ed.

Christmas gift

For the first year ever, the idea of giving and receiving Christmas gifts does not excite me. I am an anal organized list person. I usually like to make lists of who I am making Christmas cards for, who I am giving Christmas gifts to, and have an idea of when I will make and buy all of these things. This year, though I have already made the gift list, I am looking at it more in disdain than in excitement. I am not making holiday cards as I normally have in past  years because I feel no thrill at the idea of it. It’s cynical, but who is really going to appreciate all this paper anyway? I do, but then I will never see these cards again because I am giving them away.

The first year I started making cards, I also made Ed one. He threw it away after the New Year; he loves throwing things away and deleting e-mails as soon as he reads them. I asked him why he did that, and he responded, “I didn’t know that you wanted me to keep it.” From then on out, I never made him another card again, but I did send him Christmas and birthday cards, and when I came home in July to clean out his desk, he saved all of them in a neat pile in his desk. One by one, I tore them up and tossed them in the recycling… Except for one, which I placed inside his Bible that I put in his niche.

For the first year ever, I’m not going to be getting Ed a Christmas gift.

Seasons change

One of the best things about being in the Northeastern part of the United States during the autumn months is seeing the leaves change color. Of course, if you live in Manhattan, it’s easy to miss out on this completely unless you frequent Central Park or Union Square often, but in pretty much every other area, you can’t miss the stunning colors. We spent this past weekend exploring the Cleveland, Ohio, area, and it was far more stunning and dramatic than we had anticipated. The varying shades of red, orange, and yellow were particularly dramatic against today’s cloudy blue sky. It was really any photographer’s dream (or anyone who is leaf-obsessed).

I’m really fortunate that I am able to live in New York given that I was born and raised all the way across the country; I’m even more blessed because I have the luxury of traveling as often as Chris and I do and seeing so many beautiful places and things that really cannot be substituted with a mere Google Image search. The sad part about this is that whenever I feel happy now or excited about something new that I am seeing or doing, I remember that Ed isn’t here to be able to do any of these things. He has never seen the dramatic fall colors in the Northeast; he’s never experienced what it’s like to watch the snow fall from his window and later go outside for a snowball fight; he will never know how great it is to transition from the frigid winter months to the crisp but more promising spring months out here. Bart comes with us, but sometimes, that just doesn’t feel like it’s enough. An empty feeling still lurks in the back of my mind knowing he can no longer breathe the same air as I do.

Family and friend bonds

With the autumn leaves turning and Halloween just having passed us, Christmas is on a lot of our minds now. It’s really crazy to think how the period between Halloween and Christmas zoom by us, and it’s like November is almost a filler month (there’s Thanksgiving, but that even seems to come too quickly).

My cousin texted me earlier this week to ask me and my other cousin (his brother here in New York) if we’d be coming back home for Christmas this year. I will not be going home for Christmas this year. In fact, I won’t even be in this country or this continent for Christmas this year… and if I can help it, any Christmas in the foreseeable future. If Ed is not there, what is my incentive to ever come back home for Christmas ever again?

Christmas is “family time” when your family in some way brings you a degree of happiness and contentment. That is when you look forward to it and just can’t wait to get back to it that one time during the year, assuming you live away from home. But when you have realized after all the years of meaningless hostility, blaming, dysfunction, and lack of gratitude that you actually despise being with them for Christmas, why are you even spending time with these people? As sad as it is to say, I no longer believe that the bonds of family are greater than that of friends. I don’t want to continue to be in touch with a cousin or aunt or whoever *just* because he is of that relation to me. I want to be in contact with him because we enjoy each other’s company and in some way, make each other better human beings for it. As trite as it is, life is too short to be spent with miserable people who make you miserable.

Ed is coming with us to Australia this year. He’s finally going to have a happy Christmas, even if he isn’t in his human form anymore.

White room

Chris had his first ever dream of Ed the other night. The three of us were sitting in a very bright white room, and we were planning something while laughing and joking around. Oddly in the dream, Ed appeared very muscular with very defined biceps. Ed was a pretty skinny guy (though looks are deceiving, as he was very strong); it never mattered how much he ate because he’d always pretty much stay the same size. And he ate quite a lot! After he began practicing karate, he definitely became more fit and tone, and his arms became more muscular. But from the way Chris describes it, Ed would be like the next Iron Man with his new biceps.

Maybe we met him in heaven in that dream together. I always imagined heaven would be a bright place that was mostly white. Ed’s skin would be really clear, and he’d have the super masculine body he may have always wanted. He’d have 20/20 vision and never have to wear glasses again, his teeth would remain straight and white without a need for his retainers, and most importantly, he’d constantly be smiling and laughing, as though he knew how to do nothing else.